Learn about Endometriosis

The CEC was among the first specialty Centers of Expertise in Endometriosis to be implemented anywhere in the world. Since our founding in 1991 by gynecologic surgical pioneer and leading excision surgeon, Dr. Robert B. Albee, Jr., we have had the privilege of caring for thousands and thousands of patients with endometriosis and related gynepathologies from nearly 70 countries. CEC Owner and Medical Director Dr. Ken Sinervo joined the CEC over two decades ago and leads our Center by example through his compassionate and dedicated care.

This is an endometriosis learning library. It contains information collected and shared over many years. We have now compiled these resources and present them for you as a living library of information that will continue to grow. It is up to you what you do with that information.

Nancy Petersen, RN (thus the “Nancy”) began Nancy’s Nook many years ago as an online chat group (thus the “Nook”) for individuals with endometriosis . As the group grew, Nancy moved the group to Facebook and recruited the voluntary assistance of other patient advocates to help with  administration, moderation, and educational content development and curation. As members asked questions, Nancy, the administrators, and clinical experts (from within the administrators and international clinical experts) compiled individual experiences, research articles, and expert opinions. Nook also shared information from other endometriosis advocacy groups to amply and unify the patient advocacy efforts central to Nook’s mission. This effort has amassed a significant body of knowledge. As the number of files grew, Nancy’s Nook sought ways to organize the content to make it easier for group members to find the information they needed. 

Founded by Dr. Sallie Sarrel, a person with endometriosis and a pelvic physical therapist specializing in endometriosis, and Dr. Andrea Vidali, an endometriosis surgeon with more than 25+ years of experience with excision of endometriosis, we give voice to both people with the disease and people treating the disease.

Extrapelvic Not Rare was created in 2018 by Dr. Wendy Bingham, DPT.  It is a grassroots non-profit organization dedicated to advance awareness, education, and prompt policy changes that leads to earlier recognition, reduced mis and delayed diagnosis of endometriosis of disease outside of the reproductive system and local area among persons afab. EPNR’s target audience includes healthcare disciplines and general public about endometriosis as a disease with bodywide potential. 

The Endometriosis Association is a self-help organization of women and families with endo, doctors, scientists, and others interested in exchanging information about the endometriosis disease. The Association is an international organization with headquarters in Milwaukee, Wisconsin (USA), with members in numerous countries, and activities worldwide.

​The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research.